When people reach out to me about their child being diagnosed with biliary atresia and to explain to them the process of living donation I start by telling them to not even consider it unless they have a solid support system that is willing to help them throughout the whole process. It takes more than just being the donor. A lot more.
On this second day of gratitude I have to give a major shout out to our family. Without them, we physically and emotionally wouldn’t have been able to make this last year work.
The lead up to the surgery was full of major participation from both sets of our parents. We had their support throughout it all, even when the decision of living donation was scary.
My dad spent the day with me while I got all of my testing done at the hospital, and spent the morning with Bea on 7/7 while I went back with Jordan to get prepped.
Our moms spent the 2 weeks after surgery alternating at the hospital because I was so exhausted and wasn’t able to pick her up. They spent their whole day in that room with a screaming baby and a big smile on their face – never once making us feel like we were an inconvenience.
Even after we came home, they brought meals, helped us with Bea and my parents made the decision to get us a night nurse to alleviate some of the stress.
When I look back on this year, I know that the 52 week mark isn’t just a big milestone for Bea, Jordan and me. But for our entire family. And for them, we are grateful.